Resource Guide for Sickle Cell Disease

  • Address:

    141 Northwest Point Boulevard

    Elk Grove Village, IL 60007-1098

  • Phone:

    1-847-434-4000

  • Internet address:

    http://www.aap.org

  • Description of services provided:

    The American Academy of Pediatrics is a great resource for both parents and health professionals. Included on the site is a detailed policy statement on how best to manage sickle cell disease called "Health Supervision for Children with Sickle Cell Disease."

  • Address:

    231 E. Baltimore St., Suite 800

    Baltimore, MD 21202

  • Phone:

    1-800-421-8453

  • Internet address:

    http://www.sicklecelldisease.org

  • Description of services provided:

    This site includes information on sickle cell disease, how to cope with its complications, who is affected, and how to join in efforts to research treatments. A chat room allows you to chat online with other people interested in sickle cell disease. Information on conferences, news releases, and a newsletter allow you to stay up-to-date on the latest research efforts.

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